Joan Haase, PhD, RN, FAAN
Research in Palliative and End-of-Life Communication and Training (RESPECT) Center
Science of Nursing Care
Holmquist Professor in Pediatric Oncology Nursing
Co-director, Research in Palliative and End-of-Life Communication and Training (RESPECT) Center
Co-director, T32 Training Grant in Behavioral Health Nursing
University of Arizona
PhD, Texas Women's University
MSN, University of California at Los Angeles
BSN, Cornell Unversity
Dr. Haase is internationally recognized for her research on ways children, adolescents, young adults, and families positively adjust to the experience of cancer and other chronic illnesses. Her Resilience in Illness Model (RIM: formerly called the Adolescent Resilience Model) guides descriptive and intervention research to improve symptoms and psychosocial adjustment for adolescents and young adults with cancer. The RIM is in current use to guide multi-site behavioral intervention studies to improve outcomes for adolescents/young adults with high-risk cancer and their parents. The RIM was adapted as the guiding framework for research conducted by the Children’s Oncology Group Nursing Discipline and is also being used by nurse scientists internationally.
Dr. Haase is recognized for her expertise in mixed methods research. As co-director of the IUPUI Research in palliative and end-of-life Communication and training (RESPECT) Center, Dr. Haase is working with an interdisciplinary community of scientists who aim to improve palliative care/end-of-life communication across the lifespan. As a co-director of the T32 training grant in Behavioral Health Nursing and as an advisory board member of the r25 interdisciplinary training grant in behavioral oncology, Dr. Haase provides leadership in research training and mentors pre- and postdoctoral fellows, many of whom have successfully received external funding for their own work.
Dr. Haase was a recipient of the 2015 Prestigious External Award Recognition at IUPUI, was inducted into the Sigma Theta Tau International 2014 Nurse Researcher Hall of Fame, and is a Fellow in the American Academy of Nursing.
Dr. Haase serves on several foundation and NIH research study sections, and served on the American Cancer society (ACS) Council for Extramural Grants from 2009-2014.
Walther Cancer Foundation (2015-2016). MPI. Revise and evaluate the COMPLETE I standardized training protocol for PC/EOL intervention for parents of children with high risk tumors.
NIH/NCI R01 CA162181-05 (2011-2016). MPI. Palliative Cancer Care: Music Video for AYA-Parent Communication and Resilience.
NIH/NINR R21 NR013755-01 (2012-2015) Co-I. Meaningful Activity Intervention for Persons with Mild Cognitive Impairment
Indiana University Health Values (2013-2015) Co-I. Sustainable Infrastructure Development for Advanced Communication Skills Training Focus on Reflective Teaching Practices in End-of-Life Communication
St. Baldrick’s Foundation (2013-2015) Co-I. Development of a Web-based Resilience in Illness Profile Intervention for AYA with Cancer
IUPUI RESPECT Signature Center (2011-2016) Co-Director. The mission of the Research in Palliative and End-of-Life Communication and Training (RESPECT) Center, an IUPUI Signature Center is to build a collaborative, interdisciplinary scientific community of researchers and clinicians to work together to advance the science of communication in palliative and end-of-life care across the lifespan.
Walther Cancer Foundation (2013-2014) Co-I. Conduct additional exploratory analysis on influences of Resilience in Illness Model factors on quality of life in adolescents/young adults with cancer.
IU School of Nursing (2015-2016) Co-I. Active Music Engagement to Manage Acute Distress and Improve Positive Health Outcomes in Young Children undergoing Stem Cell Transplant and Parents.
Hendricks-Ferguson V., Sawin, K., Montgommery, K., Haase, J.E., Phillips-Salimi C. (2015). Novice Nurses’ Experiences with Palliative and End-of- Life Communication. Journal of Pediatric Oncology Nursing. PMID: 25556105
Hendricks-Ferguson, V. L., Kane, J.R., Pradhan, K., Chie-Schin, S., Baker, J., & Gauvain, K., & Haase, J.E. (2015). Evaluation of physician and nurse dyad training procedures to deliver a palliative and end-of-life communication intervention to parents of children with a brain rumor. Journal of Pediatric Oncology Nursing. Advance online publication. PMID: 25623029
Robb, S., Burns, D., Stegenga, K., Haut, P., Monahan, P., Meza, J., Stump, T., Cherven, B., Docherty, S., Hendricks-Ferguson, V., Kintner, E., Haight, A., Wall, D., Haase, J.E. (2014). Randomized Clinical Trial of Therapeutic Music Video Intervention for Resilience Outcomes in Adolescents/Young Adults Undergoing Hematopoietic Stem Cell Transplant: A Report from the Children’s Oncology Group. Cancer, 120(6), 909-917. PMCID: PMC3947727
Haase, J.E., Robb S., Kintner, E.K., Monahan, P. O, Stump, T., Burns, D.S., Phillips-Salimi, C. Stegenga, K.A., & Haut, P.R. (2014). The Resilience in Illness Model, Part 1: Exploratory Evaluation in Adolescents and Young Adults with Cancer. Cancer Nursing, 37(3), PE1-E12. PMID: 23519038
Kelly KP, Hooke MC, Ruccione K, Landier W, & Haase J.E. (2014). Children's Oncology Group nursing research framework. Semin Onc Nurs, 30(1), 17-25. PMID: 24559776
Haase, J.E. & Peterson, S. (2013). (Revision in Progress, 2016 Publication). Resilience. IN PETERSON & BREDOW (EDS.). MIDDLE RANGE THEORIES: APPLICATION TO NURSING RESEARCH. 2ND EDITION PP.256-284/ PHILADELPHIA: LIPPINCOTT.
Phillips-Salimi, C. R., Haase, J. E., & Kooken, W. C. (2012). Connectedness in the Context of Patient-Provider Relationships: A Concept Analysis. J Adv Nurs, 68(1), 230-245. PMID: 21771040
Robb, S.L., Burns, D.S., Docherty, S., Haase, J.E. (2010). Ensuring treatment fidelity in a multi-site behavioral intervention study: Implementing NIH Behavior Change Consortium Recommendations in the SMART Trial. Psycho-oncology, 20(11), 1193-1201. PMCID: PMC3198011
Corey, A., Haase, J.E., Monahan, P., & Azzouzzi, P. (2008). Social support and symptom distress in adolescents/young adults with cancer. Journal of Pediatric Oncology Nursing, 25(5), 275-284. PMID: 18678763
Decker, C.L., Haase, J.E., & Bell, C.J. (2007). Uncertainty in adolescents and young adults with cancer. Oncology Nursing Forum, 34(3), 681-688. PMID: 17573327
Nelson, A., Haase, J.E., Kupst, M.J. & Brace-Oneill, J. (2004). Consensus statements: Interventions to enhance resilience and quality of life in adolescents with cancer. Special Section: Proceedings from the 5th Annual State of the Science Workshop on Resilience and Quality of Life in Adolescents. Journal of Pediatric Oncology Nursing, 21(5), 305-307.
Haase, J.E. (2004). The adolescent resilience model as a guide to interventions. Special Section: Proceedings from the 5th Annual State of the Science Workshop on Resilience and Quality of Life in Adolescents. Journal of Pediatric Oncology Nursing. 21(5) 289-299.
Haase, J.E. (2000). Critique of research on adolescents’ coping with cancer. Seminars in Oncology Nursing, 16(4), PP. 328-331.
Haase, J.E., Heiney, S., Ruccione, K., & Stutzer, C. (1999). Research triangulation to derive meaning-based quality-of-life theory: Adolescent resilience model and instrument development. International Journal of Cancer, supp.12, 125-131. PMID: 10679883
Haase, J.E., Britt, T., Coward, D., Leidy, N. & Penn, P., (1992). Simultaneous concept clarification: Spiritual perspective, hope, acceptance and self-transcendence. Image, 24, 141-147. PMID: 1601456
Myers, S. & Haase, J.E. (1989). Guidelines for combining qualitative and quantitative research approaches. Nursing Research, 38, 299-301.
Haase, J.E. (1987). The components of courage in chronically ill adolescents. Advances in Nursing Science, 9(2), 64 80. PMID: 3099638